Be Happy

Be Happy
Watercolor by Renee Locks, from Brush Dance

Wednesday, October 29, 2008

More Tests

Today I had my first set of follow-up lab tests. Riding the city bus down the green ravine of Fairmount was like a trip to the country for me. My range has been very limited lately. My bones and muscles are so heavy - did I move to a planet with greater gravity when I wasn't looking?

Saturday, October 25, 2008

Still Okay

Lon Chaney and Spencer Tracy get no competition from me. I gave myself the second shot of PegIntron last night. I did not turn into a werewolf or Mr. Hyde.

I have been feeling fluish, and low in energy. Intestinal cramps yielded to the usual remedies. More water, drink more water.

Anticlimax is better than fulfilled prophecy, in this case.

Monday, October 20, 2008

So Far, So Good

Third day, feeling okay. No noticeable side effects.

Friday, October 17, 2008

Special Day

I am red-blooded again and can start treatment.

Today is the first day of my 68th year. I'm taking a significant step toward health today, which I find a very appropriate way to mark the day.

Send good thoughts.

Saturday, October 4, 2008

Proactive Waiting

Next week I'm due to have blood work to see if my blood is red enough for the challenge of treatment. I read that people's bodies produce interferon naturally; it's part of the immune system's ability to stave off virus infection. Hepatitis C virus camouflages itself so well that killer T-cells don't recognize the virus as a noxious invader. Taking ribivarin with the interferon enables the T-cells to recognize and attack the virus.

Reading blogs affects me positively when the person is still free of C after treatment. I get somber when I read that someone relapsed, or had two or three courses of treatment before it worked. Sometimes treatment doesn't work. Some of the bloggers took part in experimental trials. Today some receive interferon by intravenous drip three times a week. Others have regimens with varying mixtures of medicines.

At the orientation in September, the nurse related some history of treatment. Huge amounts of interferon were formerly given. That's not necessary, now that they know ribivarin is needed to catalyze the immune system's work. She told us the drug company charges $3600 a month for the interferon shots. We pay whatever copay is required for brand name medicines by our membership plans. The ribivarin will be generic, lower cost and lower copay.

Postponing treatment was frustrating and bewildering. I was all set for it. Friends and relations geared up to be supportive. Now I'm in limbo. Still, since I was willing to cope with dreaded side effects, I thought I should make greater efforts to improve my health and organize my home. So that's what's proactive about waiting.